1992
Nepal Hemophilia Society is founded so families have a voice and a place to register.
About Nepal Hemophilia Society
Since 1992 we have stood with people affected by hemophilia and other bleeding disorders — finding families, sharing knowledge, and asking for care that reaches every province.
Who we are
Nepal Hemophilia Society is a nonprofit organisation for people with hemophilia, von Willebrand disease and related conditions. We work with families, volunteer chapters and hospital treatment centres so diagnosis is not the end of the story.
Living with a bleeding disorder is never black and white. Life after diagnosis may start out hard, but we learn by doing, asking questions and surrounding ourselves with people who understand. Through our community, families find freedom, opportunity and confidence.
The Kathmandu office in Anamnagar is open Sunday to Friday, 9 am to 5 pm. Call 01-5172729 or email nepalhemo@gmail.com before you travel to a clinic day in another district.
Our journey
2000s
Patient registration grows and links with hospitals begin in Kathmandu and beyond.
2010s
Chapters open in provinces; advocacy pushes for safer clotting factor and diagnosis.
Today
NHS connects families, clinicians and government so care can reach every province.
Our vision & mission
Vision
- Comprehensive care of hemophilia, so people can live with dignity.
- A Nepal where a bleeding disorder does not decide a child's future.
Mission
- Find and register people with hemophilia and other bleeding disorders.
- Give families and health workers clear information about care.
- Help treatment reach patients, including through provincial centres.
- Advocate with government so safe treatment is a right, not a favour.
What we focus on
Awareness
Teaching families, teachers and health workers what a bleed looks like and where to get tested.
Progress
Registering patients and helping treatment centres learn how to care for hemophilia.
Advocacy
Asking government to fund diagnosis, factor treatment and comprehensive care nationwide.
Life with the Society
Visit or call the office
Anamnagar, Rudmatti Marg, Kathmandu. We answer questions about registration, chapters, treatment centres and how to get involved.
- Kathmandu, Nepal
- 01-5172729
- nepalhemo@gmail.com
