Treatment centres

Care is organised through hospitals and through Nepal Hemophilia Society chapters. Hospital units change their clinic days. Call the NHS office before you travel, and ask which centre can do a factor assay this week.

Start here

Nepal Hemophilia Society, Anamnagar, Rudmatti Marg, Kathmandu. Phone 01-5172729. Email nepalhemo@gmail.com. The office is open Sunday to Friday, 9am to 5pm. Staff and volunteers help with registration, referrals and questions. They do not replace the emergency department.

Hospitals families are referred to

These hospitals have been named in public NHS meetings and care pathways. Phone numbers inside hospitals change, so they are not listed here. Confirm the clinic with NHS or with the hospital the same week you plan to go.

Bir Hospital, Kathmandu — a public hospital where haemophilia care has been provided
Civil Service Hospital, Kathmandu
Kathmandu Medical College, Kathmandu

Chapters and contacts outside the valley

Volunteer chapters help families reach a centre and keep the register closer to home. Public NHS material has referred to chapters in Bhaktapur, Chitwan, Parsa, Sunsari and Kaski (Pokhara), and to a contact in Kailali. A chapter is a community link. Clotting factor and surgery still go through a hospital.

If your district is not on this list, you are not turned away. Many people travel to Kathmandu for the first diagnosis and then continue with a local hospital plus phone advice. Tell NHS your district so the Society can connect you with the nearest volunteer.

What to carry

Any old discharge papers, factor assay results and the names of products already given
A list of medicines, including herbal products
The name and phone of a relative who can speak with the team
For a child: the child health card and vaccine record

See the Society

Meet the community that keeps this list alive.

Newly diagnosed

What to do in the first weeks after a test.

Ask a question

Short answers before you call the office.

For a bleed that will not stop, a swollen neck or throat, belly pain, black stool, or a head injury, go to the nearest emergency department. Tell them haemophilia or a bleeding disorder is suspected or diagnosed. Then call your centre and NHS when the person is safe.