Guidelines
Clinicians in Nepal are asked to follow the World Federation of Hemophilia Guidelines for the Management of Hemophilia, 3rd edition, and to adapt them to the product that is actually in the pharmacy.
The third edition, published in 2020 with later updates on the WFH site, is the reference NHS names in teaching. It covers diagnosis, prophylaxis, inhibitors, surgery, physiotherapy and outcome tracking. This website does not copy that text.
Principles that do not change with the brand of factor
- Diagnose with a factor assay, not with a story alone.
- Treat a bleed early. A joint that is already tight is harder to save.
- Prefer virus-inactivated concentrates over untreated plasma products when both are available.
- Record the product name, the batch, the dose and the time.
- Test for an inhibitor when bleeding no longer responds.
- Plan dental work and surgery. Do not discover the bleeding disorder in the operating theatre.
- Include women and girls in the family history and in testing.
- Teach home care only after the family has practised with the centre.
Where the guideline and the Nepali pharmacy disagree, the centre documents the gap and treats with the safest available product. NHS uses those gaps in advocacy. They are not a reason to delay a serious bleed.
This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.