Newly diagnosed

A new diagnosis turns ordinary days into questions. You do not have to learn all of it this week. Keep the person safe, get the test in writing, and contact Nepal Hemophilia Society.

This week

Ask the doctor to write the diagnosis, the factor level if it is known, and the phone number of the clinic.
Learn the signs of a joint bleed, a muscle bleed and a head injury.
Tell the school or workplace that a bump to the head or a swollen joint needs a phone call, not a wait until evening.
Store any factor exactly as the centre teaches. Heat and freezing both spoil it.
Write down every bleed and every dose. That notebook is how the centre improves the plan.

What NHS can do

The Society registers people with haemophilia, introduces families to a chapter, and explains how to reach a centre. Volunteers are parents and patients who have already lived the first frightening year. They are not a replacement for the doctor on duty.

Call 01-5172729 or email nepalhemo@gmail.com. If you are outside Kathmandu, say your district. Office hours are Sunday to Friday, 9am to 5pm.

Understand the condition

A plain explanation of haemophilia A, B and related disorders.

Treatment

On-demand care, prophylaxis and what is realistic in Nepal.

Find a centre

Hospitals and chapters, and how to confirm a visit.

Meet the community

Other families are the reason NHS exists.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.