Treatment after diagnosis

On-demand care, prophylaxis, and what is realistic in Nepal today — expectations grounded in local supply.

On-demand treatment

Factor or another medicine when a bleed starts or before a planned procedure. Dose and product depend on severity and what the pharmacy has this month.

Rest, ice, compression, and elevation help while travelling to care but do not replace factor for significant joint bleeds.

Prophylaxis

Regular scheduled treatment to prevent bleeds before joints are damaged. Standard of care for severe haemophilia in many countries; access in Nepal is still uneven.

Home infusion is only safe after hands-on training, fridge plan, and written emergency rules.

Non-factor and extended half-life products

Some patients receive emicizumab or extended half-life factor through humanitarian programmes. Availability changes yearly.

Never switch products because another family uses them. Inhibitor status and allergies matter.

Honest conversations with the centre

Ask what happens if stock runs out mid-month. Ask how to store during power cuts. Ask dental planning steps now, not when a tooth abscesses.

NHS advocates nationally for wider access; your centre handles individual prescriptions.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.