Awareness
Many people in Nepal still live with an undiagnosed bleeding disorder. NHS teaches families, teachers and health workers what a bleed looks like and where to get tested.
Together for life
Families and volunteers mark World Hemophilia Day and ask for care in every province.
Living with a bleeding disorder is never black and white. Life after diagnosis may start out hard, but we learn by doing, asking questions and surrounding ourselves with people who understand.
Then, slowly, it becomes life again. A bleeding disorder shouldn't define who we are, what we do or how we feel.
WHAT WE DO
Our areas of focus
Progress
Since 1992 NHS has registered patients, opened a path to safer treatment products, and helped treatment centres learn how to care for hemophilia.
Advocacy
NHS asks the Ministry of Health and provincial governments to fund diagnosis, factor treatment and comprehensive care in every province.
OUR VISION & MISSION
VISION
- Comprehensive care of hemophilia, so people can live with dignity.
- A Nepal where a bleeding disorder does not decide a child’s future.
MISSION
- Find and register people with hemophilia and other bleeding disorders.
- Give families and health workers clear information about care.
- Help treatment reach patients, including through provincial centres.
- Advocate with government so safe treatment is a right, not a favour.
TOGETHER FOR LIFE
You are not alone,
A bleeding disorder changes daily life, but it does not have to be faced on your own. Nepal Hemophilia Society connects patients, parents and clinicians so care, information and a community are within reach.
- Families who already know this path
- Chapters and clinicians near you
- The Kathmandu office, Sunday to Friday
What do you need help with today?
Latest news at Nepal Hemophilia Society
Upcoming & recent events at Nepal Hemophilia Society
Members Stories
A family’s journey
Finding support, confidence and a community that understands changed everything.
Read moreLiving life with confidence
With care, knowledge and connection, a bleeding disorder does not define the future.
Read moreStronger together
Families across Nepal are sharing experience and opening doors for the next generation.
Read moreBecome a Member
Join Nepal Hemophilia Society and connect with a community that understands.
Read moreCampaign with us
Help improve access to diagnosis, safe treatment and comprehensive care.
Read moreGet Involved
Volunteer, fundraise or share your expertise to support families across Nepal.
Read moreReach Out
We’re on the end of an email or phone whenever you need information and support.
Read moreUnderstanding Hemophilia & other bleeding disorders
People with bleeding disorders have a condition that means their blood cannot clot properly. They may bleed for longer and can experience spontaneous bleeds into joints, muscles and soft tissues.
Common disorders include Hemophilia A & B and Von Willebrand Disease.
Browse bleeding disorder information