Stronger together

Families across Nepal share experience and open doors for the next generation — that collective voice is what provincial advocacy needs.

From private worry to collective voice

Chapters and member meetings turn worry spoken only at home into a demand officials can hear. Registration counts matter when NHS asks a province for assay funding: empty lists are easy to ignore.

Volunteer chapters in Bhaktapur, Chitwan, Parsa, Sunsari, Kaski, and contacts in other districts help families reach hospitals and keep phone numbers current.

What clinicians and parents learn together

When parents and doctors sit in the same room, both sides hear what textbooks omit: load-shedding and fridge storage, bus fare to Kathmandu, teeth pulled without factor because nobody planned ahead.

That dialogue improves protocols locally even when national supply is slow to change.

Membership as representation

Membership is open to people with bleeding disorders, parents, clinicians, and supporters. There is no online payment on this website — the office confirms details and explains fees if applicable.

Each member strengthens every ask to government for screened blood, virus-inactivated products, and records of every batch given to every patient.

Join the next gathering

Follow events on this website and ask nepalhemo@gmail.com about World Hemophilia Day programmes near you.

If distance blocks travel, ask which phone contact is nearest. Community is not only the capital.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.