Latest news
News on this page comes from NHS programmes and from public decisions that change care in Nepal. It is not a medical alert service. For a bleed, contact your centre or the emergency department.
Provinces asked to invest in diagnosis and treatment
Nepal Hemophilia Society met provincial government representatives in Kathmandu and asked them to fund diagnosis, care and treatment closer to where families live. The meeting was held on 11 March 2024.
Members, clinicians and the Society’s leadership used the day to show what comprehensive care means: a factor assay, a product that is safe, physiotherapy, and a clinic that does not disappear after one camp.
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Members gather in Kathmandu
The same meetings brought families from beyond the valley into one room. For many, it was the first time they had heard another parent describe a swollen knee in the same words.
Registration remains open. If you were in the room and have not completed your details, call the Anamnagar office.
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World Hemophilia Day in Nepal
Each 17 April NHS marks World Hemophilia Day with the global community and with a local demand: people in Nepal should not wait years for a name for their bleeding.
Schools, hospitals and chapters can host the day. Write to nepalhemo@gmail.com if you want the Society involved.
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