Provinces asked to invest in diagnosis and treatment
On 11 March 2024 Nepal Hemophilia Society asked provincial governments to fund care closer to where families live.
What happened on 11 March 2024
Nepal Hemophilia Society met provincial government representatives in Kathmandu. Members, clinicians, and Society leadership asked provinces to invest in diagnosis, care, and safe treatment — not only one-day awareness camps.
The meeting was held at a time when families still travel long distances for a factor assay or a single infusion. Provincial budgets were challenged to reflect that reality.
What comprehensive care means
Comprehensive care is more than a poster. It includes a factor VIII or IX assay, virus-inactivated concentrate when available, physiotherapy, dental planning, and a clinic that continues after World Hemophilia Day.
Families at the meeting described travel costs, lost wages, and children who missed school because joints were already damaged before diagnosis.
- Factor assays reachable in each province
- Safe clotting products in hospital pharmacies
- Recorded batches and product names for every infusion
- Training for doctors, nurses, dentists, and physiotherapists
Why provinces matter
Health delivery in Nepal is increasingly discussed at provincial level. If a province funds only outreach without laboratory capacity, families still return to Kathmandu for every test.
NHS uses registration data and district stories — with consent — to show where gaps remain. Numbers without faces are easy to ignore; both together are harder to dismiss.
What members can do next
Write a short account of care in your district: how far you travel, what product was used, what you still lack. Email nepalhemo@gmail.com with the subject “Provincial advocacy”.
Follow news on this website and attend World Hemophilia Day events when they happen near you. Advocacy continues between meetings.
This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.