World Hemophilia Day in Nepal

Each 17 April NHS marks World Hemophilia Day with the global community and a local demand for diagnosis.

The global day and local meaning

World Hemophilia Day is 17 April, the birthday of Frank Schnabel, founder of the World Federation of Hemophilia. Around the world, patient organisations mark the day with awareness and policy asks.

In Nepal the message is concrete: people should not wait years for a name for their bleeding. Red colour, rallies, and school talks are tools — diagnosis and safe treatment are the goal.

How NHS marks the day

Hospitals, schools, colleges, and chapters host programmes across provinces. Some years focus on media; others on meetings with officials. The Society publishes materials and may send speakers when the calendar allows.

Write to nepalhemo@gmail.com if you want NHS involved in an event you are planning. Early contact helps staff allocate volunteers and fact sheets.

Beyond one day

Awareness without laboratory capacity fades by May. NHS therefore pairs World Hemophilia Day with ongoing asks for factor assays, safe products, and provincial budgets.

If you attended a rally, follow up by registering as a member and telling the office what care still fails in your district.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.