Campaign with us

Help improve access to diagnosis, safe treatment, and comprehensive care — campaigning in Nepal is letters, media, and dignified patient stories.

What campaigning looks like here

Campaigning is not only protests. It includes letters to provincial ministries, media work on World Hemophilia Day, parliamentary-style advocacy modelled on international examples, and patient stories told with consent and dignity.

NHS compares notes with the UK Infected Blood Inquiry and World Federation of Hemophilia guidelines, but every demand is local: screened donations, virus-inactivated products, factor assays in reach, and records.

District stories change policy

A paragraph about how far you travel for one infusion, or how long diagnosis took, is evidence officials cannot dismiss as foreign statistics.

Email nepalhemo@gmail.com with the subject “Advocacy”. Staff will explain how your story may be used and ask permission before sharing names publicly.

Skills volunteers offer

Translation between Nepali and English, photography with consent, transport for families attending meetings, social media that points to official NHS channels, and introductions to local journalists.

Clinicians volunteer protocol advice and training — always coordinated with the office so messages stay consistent.

Safety in public advocacy

Never share another family’s medical details without permission. Never post factor batch numbers or full lab reports online.

For emergencies, campaign contacts do not replace the treatment centre. Keep 01-5172729 for society business and your hospital number for bleeds.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.