World Hemophilia Day
Stand with Nepal’s bleeding disorder community on 17 April — and keep asking for diagnosis and safe treatment after the banners come down.
Why 17 April matters worldwide
World Hemophilia Day is observed every 17 April, the birthday of Frank Schnabel, who founded the World Federation of Hemophilia. Patient organisations on every continent use the day to explain bleeding disorders and to ask governments for laboratory capacity and safe products.
Nepal Hemophilia Society is a national member organisation of WFH. That membership connects Nepali families to international guidelines, humanitarian aid discussions, and a calendar the media already recognises.
What happens in Nepal
Activities range from hospital talks and school assemblies to rallies, red-light landmarks, and interviews on radio and television. Some years emphasise children; others focus on women and girls or on blood safety.
The local message is always practical: a person who bleeds for years without a factor assay is not receiving modern care. Awareness should lead to testing and referral, not fear or stigma.
- Contact nepalhemo@gmail.com early if you want NHS speakers or materials
- Register as a member so the Society can count who it represents
- Tell the office what care still fails in your district after the event
Planning an event in your school or hospital
You do not need to be a clinician to host a programme. A short talk, a poster display, and a moment for questions can change whether a teacher refers a child for testing.
Avoid graphic images that frighten children without explaining what help exists. Pair every statistic with a phone number: 01-5172729 for NHS, and your local hospital for emergency care.
After World Hemophilia Day
One day of visibility does not replace provincial budgets for factor assays or virus-inactivated concentrate. NHS uses registration data and district stories in the months after April to keep government attention.
If you attended an event, follow up by completing membership, sharing a photo with consent, or writing a paragraph about travel to care. Advocacy continues when the microphones are off.
This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.