I need help and support

Living with a bleeding disorder in Nepal means planning for school, work, travel, teeth, and ordinary life — not giving up on life.

Planning, not prohibition

Day-to-day living is about knowing when to treat, when to rest a joint, and when to call the centre. Most people continue study, employment, and family life with adjustments agreed in writing.

A bleeding disorder should not silently decide a child’s education or an adult’s job. When exclusion happens, NHS can sometimes help you speak with institutions — but medical plans come from the centre.

Dental care, surgery, and childbirth

Any procedure that breaks skin or gum needs a plan before the appointment date. The centre coordinates factor or other products if they are available that month in Nepal.

Do not arrive at a dentist or surgeon without telling them about the bleeding disorder and without the centre’s letter. Discovering haemophilia on the operating table is dangerous.

Women and girls need obstetric plans too. Heavy periods and postpartum bleeding are symptoms, not something to endure without testing.

Exercise, physiotherapy, and joints

Strong muscles protect joints that have already bled. Physiotherapy after a bleed is part of care, not an optional extra. Ask whether your centre or NHS knows a therapist familiar with haemophilia.

Contact sports with high head-injury risk need honest discussion with the centre. Swimming and many non-contact activities are often encouraged when joints are stable.

Community and chapters

Provincial chapters and member meetings exist so families outside Kathmandu can share experience. You are not the only household figuring out bus travel with factor or explaining bleeds to a village school.

Membership connects you to registration, advocacy, and event notices. Call the office if you do not know whether a chapter meets near you.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.