Treatment centres and inhibitor tests

Where to ask for an inhibitor assay and specialist referral in Nepal — start with NHS and your haemophilia centre.

When to suspect an inhibitor

Bleeds that used to stop with factor now last longer. Ordinary doses seem to do nothing. A child newly diagnosed starts bleeding despite treatment.

Do not double doses at home. Call the treatment centre and ask for an inhibitor test with the next factor level check.

Hospitals in public NHS pathways

Families are commonly referred to major centres in Kathmandu — including TU Teaching Hospital and Kanti Children’s Hospital — and to services linked through NHS meetings. Phone numbers inside hospitals change; confirm clinic days the same week you travel.

Inhibitor assays are specialist tests. A small district lab may need to send samples. Ask how long results take before you leave home.

What to carry

All factor assay results, product names already used, bleed diary if you keep one, and letters from previous hospitals.

List dates when treatment seemed to fail. Patterns help specialists choose the next product.

NHS navigation role

Call 01-5172729 or email nepalhemo@gmail.com. The office does not run inhibitor tests but helps families ask the right hospital the right question.

Register so NHS knows inhibitor patients exist in your province when advocating for product stock.

This page is general information from Nepal Hemophilia Society. It is not a diagnosis or a treatment plan. A bleed, a head injury, or bleeding after an accident needs urgent hospital care. Ask your treatment centre before you change any treatment.